Search

Our Story

Better, Safer Healthcare

IEC (Institute for Exceptional Care) is a national nonprofit working to make healthcare better and safer for people with intellectual and/or developmental disabilities (IDD).

IEC works together with people with IDD, their families, and healthcare professionals. They create tools, programs, and campaigns to change how healthcare is taught, provided, and paid for.

The Challenge

Our healthcare system has strengths, but it can also be confusing and challenging. For the 16 million people with IDD, it may not work well and can even be dangerous. By using new ideas, we can make big changes to our system.

Our Solution

We work together with the healthcare and IDD communities to strengthen how healthcare is taught, delivered, and paid for, driving sustainable change so that:

All clinicians feel confident and prepared to provide high-quality care and support for people with IDD;

The health priorities and needs of people with IDD are properly addressed; and

Insurance coverage supports whole-person, coordinated care and services that meet the needs of the IDD population.

By tackling these challenges, we are building an inclusive, accountable healthcare system that empowers people with IDD to thrive and reach their full potential.

Our Team

Meet the team behind our work.

Mission

IEC combines knowledge from within healthcare and real-life experience of people with IDD. This helps make healthcare better and safer for people with IDD.

Vision

A world where people with disabilities enjoy the best possible health so they can live life to the fullest.

Values

We believe healthcare works best when it…

leading healthcare

Founding Story

A photo of two people beside each other and looking at the camera. On the left is a seated woman in a white sweater, and on the right is a young man in a striped shirt. IEC was born out of the frustrations and anxieties that too many families face in getting proper medical care for their loved ones with IDD. Founded by Dr. Mai Pham and other healthcare professionals, IEC was created to drive sustainable change after their own difficult experiences navigating the healthcare system.

As a physician herself, Mai witnessed firsthand the lack of education, poor care coordination, and haphazard treatment her own child received growing up autistic. Mathematically gifted, kind, and highly observant, her child faced increasing struggles over time due to unreliable school and clinical support. Mai relates, “We encountered a lot of problems coordinating services…no one told us what to expect at different stages of development, and we had clinicians who gave him the right drug for the wrong reasons at the wrong dose just because they weren’t educated enough.”

IEC’s founders have led national healthcare transformation efforts in both public and private sectors. They understand the lack of clinical education, fragmented coordination among services, and dismissive attitudes that families often endure. They witnessed the daily barriers caused by a system ill-equipped to care for the complex needs of those with IDD. But based on their industry experience, they also saw the promise and potential when empathetic clinicians, robust training programs, advocates, and inclusive policies all work together seamlessly.

Today

IEC has quickly become influential despite being a new organization. Our projects have involved many people and groups, such as:

--Dozens of people with IDD who advocate for themselves
--Family care partners
--Experts on disability
--Big university health centers
--National and regional health insurance companies
--Community health clinics
--State agencies for Medicaid and developmental disabilities
--Federal agencies in the Department of Health and Human Services
--People who start new businesses in healthcare and disability
--Professional organizations for doctors and other healthcare providers
--Groups that teach healthcare professionals
--Organizations that accredit healthcare providers

We are proud to have worked with important experts to create valuable research. These partners include:

--Epic, the biggest electronic health record company in the US
--Augusta University
--Brandeis University
--Milliman, a top healthcare data analysis company

Every day, is bringing people together to make healthcare better. 

Our History

2020

2021

2022

2023

2024

get involved

Help us reach our goals