IEC Projects: An Overview

A Portfolio for Transformation

Since launching in 2020, IEC has developed and advanced a dynamic slate of projects to help transform healthcare for people with intellectual and/or developmental disabilities (IDD).  

The major projects in IEC’s portfolio are listed below. To read more about a specific project, meet our partners, advisors, and supporters, and find updates and work products (as they become available), please click on the project title or the Learn More link.  

All the projects outlined here align, in different ways, with our theory of the Three C’s -- Smarter Coverage, Stronger Connections, and Better Care -- that IEC believes represent critical building blocks for sustainable change. The lessons from each project thus inform other aspects of our work. For more detail, see our Theory of Change.

ABC3: Action to Build Clinical Confidence & Culture
A multi-stakeholder action collaborative that will scale strategies to engage, prepare, and support general clinicians in providing better IDD care. Learn more

IIDDEAL (Individuals with IDD Engaged, Aligned, and Leading): Outcomes that Matter
A project to engage people with IDD, caregivers, clinicians, and insurers/government to develop consensus on what health and life outcomes are highest priority, generating a health outcomes framework to ensure that future research will be meaningful to the IDD community, and feasible for clinicians, insurers, and government to support. Learn more

SCANS: Seamless Care Alliance of Nassau & Suffolk
A direct care pilot program, based on Long Island, to reduce ED visits and improve outcomes and transitions back to the community by strengthening care coordination between health systems, home- and community-based services, insurers, government agencies, and consumers. Learn more

Exploring an Optimal Integrated Care System for People with IDD (NASEM Workshop)
A national workshop in December 2021 at the National Academies of Science, Engineering, and Medicine (NASEM), for which IEC CEO Mai Pham and IEC Board member James Perrin, MD, are planning committee co-chairs. Learn more.

IEC commissioned three projects that will be presented at the NASEM workshop and published as white papers:  

  • Defining Healthcare’s Optimal Role in Care Coordination with Other Service Sectors to Support People with IDD

  • Case Studies of Innovative Financing and Payment Models for Care of People with IDD

  • Defining IDD Subpopulations Based on Levels of Service Need

Healing the Nation – Addressing the Needs of People with Intellectual & Developmental Disabilities
A collaboration with Well Being Trust that outlines high-priority actions the federal government can take to improve health and life outcomes for people with IDD.

In development:

Making I/DD Visible
A groundbreaking initiative to deploy machine learning/artificial intelligence to identify people with IDD in clinical and claim data, address disparities, and build a business care for better care. Learn more