Exploring an Optimal Integrated Care System for People with IDD (NASEM Workshop)
Exploring an Optimal Integrated Care System for People with Intellectual and Developmental Disabilities is a three-day workshop that was hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) in December 2021.
IEC CEO Mai Pham (right) and IEC Board member James Perrin, MD, chaired the Planning Committee.
Video of all panels is available:
Day 1 Panels: Current Challenges (click here)
Speakers include: James Perrin, Edward Schor, Lisa Iezzoni, Nanfi Lubogo, Kara Ayers, Matt Holder, Susan Havercamp, Amy Hewitt, Mai Pham, Michael Monson, Ari Ne’eman, Cheryl Powell, Maura Sullivan.
Day 2 Panels: Current and Promising Interventions (click here)
Speakers include: Mai Pham, Elizabeth Mahar, Clarissa Kripke, Patricia Aguayo, Lauren Easton, Vijay Ravindran, Susan Thompson Hingle, Lisa Howley, Sarah Ailey, Mai Pham, Brede Eschliman, Sarah Scholle, Stephanie Rasmussen.
Day 3 Panels: Looking Forward/Blue Skies (click here)
Speakers include: Kara Ayers, Alicia Bazzano, John Kitzhaber, Sharon Lewis, Charlene Wong, Julia Bascom, Alyna Chien, Colleen Kidney, Joan Alker, Joshua Sharfstein, Sandra Schneider, Helen Burstin, Karrie Shogren, Andrés Gallegos, Rick Gilfillan, Mai Pham, Maulik Trivedi.
High-Impact Funding Makes It All Possible
IEC and NASEM are deeply grateful to an anonymous sponsor for supporting this workshop - a gift inspired by her grandson.
Each day was captured in real time by graphic recorder Renatta Algalarrondo. This example comes from the first panel on Day 1. Find the full graphic record here (Day #1, Day #2, Day #3) or with the video from that day (see links above.)
Our thanks to the Lucile Packard Foundation for Children’s Health for their support of this work.
WHITE PAPERS
Three analyses commissioned by IEC that informed presentations at the NASEM workshops are being published as white papers, on these topics:
Innovative Financing and Payment Models for Care of People with IDD: Three Case Studies
This analysis will focus on unique cases of Medicaid, other state financing, and employer financing of care for people with IDD and describe what could prevent or allow them to be scaled. Read it here.Research Team: Aurerra Health; author, Brede Eschliman
Risk adjustment practices can help identify individuals with IDD as a distinct group and also allocate more resources to those service providers caring for people with IDD so that, ultimately, people with IDD receive the right services. This paper discusses the concept of risk adjustment for payment of healthcare and home- and community-based services (HCBS); current strategies for risk adjustment; why such practices may not work well when designing for payment for services for people with IDD; and potential ways to strengthen these practices.
Research Team: Alyna T. Chien, MD, MS of Harvard Medical School and Boston Children’s Hospital; and Colleen Kidney, PhD, of the Human Services Research Institute
Defining Healthcare’s Optimal Role in Care Coordination with Other Service Sectors to Support People with IDD (COMING SOON)
Through stakeholder interviews and reviews of current literature and community experiences, this project will define the critical functions for coordinating clinical and home- and community-based services, and propose who should perform those functions to best support people with IDD.Research Team: Health Management Associates