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About Us

Who We Are

IEC (Institute for Exceptional Care) is a national nonprofit working to make healthcare better and safer for people with intellectual and/or developmental disabilities (IDD). IEC partners with people with lived experience of IDD, family members, and healthcare professionals to change the way care is taught, delivered, and paid for by creating tools, programs, and campaigns.

Our Story

IEC was born out of the frustrations and anxieties that too many families face in getting proper medical care for their loved ones with IDD. Founded by healthcare professionals with the lived experience of supporting loved ones with IDD, IEC was created to drive large-scale, sustainable change in healthcare that improves wellbeing for people with IDD.

Our Impact

Every day, IEC is delivering on its mission of building a movement that gives people with IDD the safe, informed, and high-quality care they deserve across every service and setting and centering their perspectives in the co-creation of solutions.

Our Team

IEC has the credibility, connections, and commitment to create meaningful change for the IDD community in healthcare. Our staff’s healthcare transformation expertise means we grasp the inner workings of the system. Our lived experience of having and/or supporting loved ones with IDD helps us earn and sustain the trust of the disability community.

Our Partners

IEC’s work is made possible through the generous support of forward-thinking partners. We’re grateful to the institutions and funders who share our vision for an equitable and high-quality healthcare system.

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