News & Resources

Resources

IEC is committed to sharing knowledge and resources that advance healthcare equity and improve outcomes for people with intellectual and/or developmental disabilities (IDD).

Through research, tools, and educational materials developed in partnership with the disability and healthcare communities, we are equipping clinicians, policymakers, and advocates with the insights needed to transform how care is taught, delivered, and paid for.

Explore our growing library of resources to learn how you can help create a better and safer healthcare system.

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Fact Sheet

Understanding the IDD Community: Essential Data and Insights

The IDD population in America faces significant health disparities and challenges accessing quality care. This fact sheet provides key demographics, prevalent conditions, healthcare use trends, and barriers to care for people with IDD.

Tool

National Roadmap for Disability-Inclusive Healthcare

Everyone deserves high-quality healthcare. That’s why we developed the National Roadmap for Disability-Inclusive Healthcare, a plan for clinicians to learn how to provide the best healthcare possible to people with IDD.

Tool

Principles for Authentic Community Engagement

The path to better health outcomes starts by valuing the IDD community’s expertise. This tool outlines six principles of authentic community engagement, provides examples of how the principles work in practice, and offers practical strategies for scaling.

Video

Using the National Roadmap for Action

This webinar, which features self-advocate and healthcare ABC3 Steering Group members, explores how to take the National Roadmap for Disability-Inclusive Healthcare from words to action.

Video

IEC’s Disability Policy Outlook: Chat with the Experts

A conversation with Don Berwick and Henry Claypool, moderated by Susan Dentzer, about what’s possible in federal action on disability policy.

Report

Beyond Demonstrations: Implementing a Primary Care Hybrid Payment Model in Medicare

People with IDD need more time with their doctors but don’t get it. Mai Pham co-authors this paper with Robert A. Berenson and Adele Shartzer of the Urban Institute on ensuring clinicians have adequate time to provide high-quality care to people with complex needs, published in Health Affairs Scholar.

Tool

How to Finance Health Roundtable

Americans spend on health care more than double the per capita average of high-income countries yet many health outcomes in the U.S. lag considerably. Founder and President Mai Pham joined experts across the healthcare system for an NEJM Catalyst roundtable on how to finance whole health and well-being.

Report

Valuing America’s Health: Aligning Financing to Reward Better Health and Well-Being

Mai Pham chaired a committee for The National Academy of Medicine that recently released this report, which compares the need for urgent action on declining health in America to the urgent need for climate action. It calls for government to set regulatory and financial incentives that value a community’s health.

Report

Risk Adjustment for Payment of Healthcare and Home- and Community-Based Service Sectors: The Case for People with IDD

Accurately predicting how much and the kinds of services a group of people will need is a crucial aspect of health care payment because it helps allocate more resources to providers who care for people with IDD and complex needs.

Video

Exploring an Optimal Integrated Care System For People with IDD (NASEM Workshop)

This three-day workshop, hosted by The National Academies of Sciences, Engineering, and Medicine (NASEM) in December 2021, outlined the current gaps in the healthcare system for people with IDD and explored what the ideal system looks like.

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Resources

Explore our growing library of resources to learn how you can help create a better and safer healthcare system.

Understanding the IDD Community: Essential Data and Insights

National Roadmap for Disability-Inclusive Healthcare

Principles for Authentic Community Engagement

Using the National Roadmap for Action

IEC’s Disability Policy Outlook: Chat with the Experts

Beyond Demonstrations: Implementing a Primary Care Hybrid Payment Model in Medicare

How to Finance Health Roundtable

Valuing America’s Health: Aligning Financing to Reward Better Health and Well-Being

Risk Adjustment for Payment of Healthcare and Home- and Community-Based Service Sectors: The Case for People with IDD

Exploring an Optimal Integrated Care System For People with IDD (NASEM Workshop)

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