News and Resources

Resources

IEC works to share information and tools that make healthcare more fair and lead to better results for people with IDD.

We work with the disability and healthcare communities to create studies, tools, and learning materials. These give doctors, policymakers, and advocates the knowledge they need to change how care is taught, given, and paid for.

Explore our growing library of resources to learn how you can help create a better and safer healthcare system.

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Report

Engagement to Identify Health Priorities of People With Intellectual and/or Developmental Disability

This project had a big goal: to find out what health outcomes are most important to people with IDD. We first needed to create ways for many different partners to work together and share ideas. This report outlines several findings for how to improve care delivery for people with IDD.

Report

Environment of Care: Resource Guide for Emergency Departments

By using this guide, hospitals can take meaningful steps toward safer, more inclusive emergency care environments. EDs can be places where every patient feels respected and supported. This guide is designed for hospital leaders, administrators, and ED teams who want to improve care for people with IDD.

Tool

Positive Discourse: Communication Disabilities 101 for Healthcare Professionals

Positive Discourse provides practical, evidence-based skills that help healthcare professionals communicate more effectively with patients who have disabilities. Clinicians learn straightforward strategies that reduce errors, improve patient satisfaction, and build trust.

Tool

Essential Resources for IDD Advocates

Your go-to guide for understanding rights, navigating care, and driving change for people with intellectual and developmental disabilities. Explore dozens of essential tools, guides, and reports curated to support IDD advocates, self-advocates, and families. This collection makes it easy to find exactly what you need.

Report

IDD Health Outcomes that Matter: Community-Led Standards for Improvement

True health is more than just vital signs. For people with IDD, well-being includes many different aspects of life that are important to them personally. This agreed-upon plan defines the 43 National Goals, nine Health Outcome Domains, and 29 Priority Elements that healthcare leaders must focus on, representing the perspectives of the IDD community.

Fact Sheet

Understanding the IDD Community: Important Data

People with IDD in America face big health differences and problems getting good care. This fact sheet shares key information about:

--Who makes up the IDD population
--Common health conditions
--Healthcare use patterns
--Obstacles to getting care

Tool

National Roadmap for Disability-Inclusive Healthcare

Everyone deserves high-quality healthcare. That’s why we developed the National Roadmap for Disability-Inclusive Healthcare, a plan for clinicians to learn how to provide the best healthcare possible to people with IDD.

Tool

Principles for Authentic Community Engagement

To improve health for people with IDD, we must value the community's knowledge. This tool explains six guidelines for real community involvement. It also gives examples of each of the guidelines in real life and practical tips on how to use them. When we truly listen to and involve the IDD community, it leads to better health results.

Video

Using the National Roadmap for Action

This webinar, which features self-advocate and healthcare ABC3 Steering Group members, explores how to take the National Roadmap for Disability-Inclusive Healthcare from words to action.

Video

IEC’s Disability Policy Outlook: Chat with the Experts

A conversation with Don Berwick and Henry Claypool, moderated by Susan Dentzer, about what’s possible in federal action on disability policy.

Help us reach our goals.

Resources

Explore our growing library of resources to learn how you can help create a better and safer healthcare system.

Engagement to Identify Health Priorities of People With Intellectual and/or Developmental Disability

Environment of Care: Resource Guide for Emergency Departments

Positive Discourse: Communication Disabilities 101 for Healthcare Professionals

Essential Resources for IDD Advocates

IDD Health Outcomes that Matter: Community-Led Standards for Improvement

Understanding the IDD Community: Important Data

National Roadmap for Disability-Inclusive Healthcare

Principles for Authentic Community Engagement

Using the National Roadmap for Action

IEC’s Disability Policy Outlook: Chat with the Experts

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