At IEC (Institute for Exceptional Care), we believe people with intellectual and/or developmental disabilities (IDD) deserve healthcare that sees, respects, and supports them. In 2024, with your help, we made significant progress towards that goal.
We’re proud to share our 2024 Impact Report, which highlights how IEC is transforming the way healthcare is taught, delivered, and paid for, ensuring that people with IDD receive the person-centered care they deserve.
2024: A Year of Impact and Growth
Here are just a few of the ways IEC created change in 2024:
1. Driving systemic change with the ABC3 Roadmap
- Launched the National Roadmap for Disability-Inclusive Healthcare, our vision for how healthcare can better serve people with IDD
- 192 individuals and organizations endorsed the Roadmap
- Shared the Roadmap at 10 national speaking events
2. Equipping providers to deliver better care
- Produced a 90-minute training course on caring for people with communication disabilities
- Developed new resources to make dental practices more inclusive and accessible
3. Creating tools for self-advocacy
- Finalized the Always Uniquely Me app, which helps people with IDD share their healthcare needs in emergency rooms (ER)
- Built tools to improve safety and reduce stress during ER visits
4. Building community leadership
- Grew the IDD Advocate Corps from 30 to 90 members
- Created new committees for self-advocates, caregivers, and healthcare professionals to collaborate on solutions
5. Shaping national conversations
- Published our national health goals for people with IDD in JAMA
- Hosted the second IIDDEAL Policy Summit with government leaders, health plans, and advocates
Thank You
None of this work would have been possible without you – our partners, supporters, and self-advocates. Your support helps us train clinicians, develop new resources, and, most importantly, center the voices of people with IDD in healthcare.
Let’s keep moving forward together.