Changing How Healthcare is Paid For
IIDDEAL Communications Toolkit
Resources on IIDDEAL: Outcomes That Matter for People with IDD
About the Toolkit
This toolkit is your go-to source for sharing IIDDEAL with others. It brings together reports, one-pagers, explainers, and presentation slides you can use to introduce the project, explain what it’s working toward, and share updates on where things stand in Phase 3.
IIDDEAL (Individuals with IDD Engaged, Aligned, and Leading) is IEC’s project to identify the health and life outcomes that matter most to people with intellectual and/or developmental disabilities (IDD), and to build ways to measure them. Whether you’re introducing IIDDEAL to a new partner, prepping a presentation, or looking for the latest project update, you’ll find what you need here.
New resources will be added as the project progresses, so check back for the most current materials.
- 1 in 20 Americans have IDD
- 4x: how much more likely a person with IDD is to be mistreated by healthcare professionals than a person without IDD
- 4x: incidence of maternal mortality for women with IDD over women without IDD
- 30% of people with IDD experienced adverse events during hospital visits
Phase 3 Report: Quality Measure Recommendations
This Phase 3 report reviewed dozens of quality measures to identify which are most important for people with IDD.
See our important recommendations for how healthcare systems can improve care.
IIDDEAL Guides
One pager and multi-page PDF guides on IIDDEAL.
12 Quality Measures
We want healthcare to understand how to measure the things that are most important to people with IDD so that they can support better health and wellness.
Important Guide: Quality Measure Basics
A quality measure is a tool we use to assess how well health care is working for us.
This guide will introduce you to quality measures and help you understand why they are so important.
IEC is grateful for the following funders, whose support makes IIDDEAL possible:
IDD Health Outcomes That Matter: Community-Led Standards for Improvement
True health is more than just vital signs. For people with IDD, well-being encompasses a holistic set of outcomes that matter most to them as individuals. This consensus framework defines the 43 National Goals, nine Health Outcome Domains, and 29 Priority Elements that healthcare leaders must focus on, representing the perspectives of the IDD community.
By centering the lived experiences of people with IDD and their care partners/givers, we can transform healthcare to provide personalized supports that improve quality of life.